Development and Evaluation of the Telehealth in Motor Neuron Disease System: The TIME Study Protocol.

ABSTRACT:

Background

For more responsive care provision for motor neuron disease and caregivers, a digital system called Telehealth in MND-Care (TiM-C) was created. TiM-C sends regular symptom questionnaires to users; their responses are sent to health care professionals (HCPs). To enable people with motor neuron disease to participate in research studies more easily, a parallel platform was developed from TiM-C, called Telehealth in MND-Research (TiM-R). TiM-R can advertise studies, collect data, and make them available to MND researchers.

Objective

This study has 4 work packages (WPs) to facilitate service approval, codevelop the TiM systems, and evaluate the service. Each WP aims to understand (1) what helps and hinders the approval of the TiM-C system as a National Health Service;

SUBMITTER: Knox L 

PROVIDER: S-EPMC11496908 | biostudies-literature | 2024 Oct

REPOSITORIES: biostudies-literature