Data professionals' attitudes on data privacy, sharing, and consent in healthcare and research.

ABSTRACT:

Objective

Individuals who work on health data systems and services are uniquely positioned to understand the risks of health data collection and use. We designed and conducted a survey assessing the perceptions of those who work with health data around health data consent, sharing, and privacy practices in healthcare and clinical research.

Methods

A 43-item online survey was distributed via a market research firm to individuals (18+) who work with health data in the United States from March to April 2023. Descriptive statistics were calculated for all variables. Associations with demographic variables were assessed using Pearson's X ² tests and ordinal logistic regression.

Results

Most of our respondents (61.7%) reported that they would trust people

SUBMITTER: Kaplow K 

PROVIDER: S-EPMC11504247 | biostudies-literature | 2024 Jan-Dec

REPOSITORIES: biostudies-literature