Establishing data elements and exchange standards to support long COVID healthcare and research.

ABSTRACT:

Objective

The Multiple Chronic Conditions (MCCs) Electronic Care (e-Care) Plan project aims to establish care planning data standards for individuals living with MCCs. This article reports on the portion of the project focused on long COVID and presents the process of identifying and modeling data elements using the HL7 Fast Healthcare Interoperability Resources (FHIR) standard.

Materials and methods

Critical data elements for managing long COVID were defined through a consensus-driven approach involving a Technical Expert Panel (TEP). This involved 2 stages: identifying data concepts and establishing electronic exchange standards.

Results

The TEP-identified and -approved long COVID data elements were mapped to the HL7 US Core FHIR profiles for syntactic representatio

SUBMITTER: Dolin G 

PROVIDER: S-EPMC11519022 | biostudies-literature | 2024 Oct

REPOSITORIES: biostudies-literature