A national unmet needs assessment for CTSA-affiliated electronic health record data networks: A customer discovery approach.

ABSTRACT:

Introduction

The expansion of electronic health record (EHR) data networks over the last two decades has significantly improved the accessibility and processes around data sharing. However, there lies a gap in meeting the needs of Clinical and Translational Science Award (CTSA) hubs, particularly related to real-world data (RWD) and real-world evidence (RWE).

Methods

We adopted a mixed-methods approach to construct a comprehensive needs assessment that included: (1) A Landscape Context analysis to understand the competitive environment; and (2) Customer Discovery to identify stakeholders and the value proposition related to EHR data networks. Methods included surveys, interviews, and a focus group.

Results

Thirty-two CTSA institutions contributed data for analysis. Fi

SUBMITTER: Mora N 

PROVIDER: S-EPMC11523010 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature