Instruments for the assessment of quality of life in children and adolescents with Down syndrome: a scoping review.

ABSTRACT: The construct of quality of life (QoL) includes aspects of health and well-being of people. Down syndrome [DS] or trisomy 21 is one of the most common congenital anomalies. DS is characterized by motor and cognitive alterations that affect health and QOL of both the child and caregiver.In pediatrics, there are various instruments to assess Health-Related Quality of Life (HRQoL) and QoL. The advantage of these instruments is that they can be implemented in any type of disease and population in general. However, they may have certain disadvantages, such as the difficulty in evaluating specific aspects of each disease or condition related to Down syndrome. The aim of this study was to identify 1: instruments used to assess quality of life in children with Down syndrome. 2: psychometrics prope

SUBMITTER: Rodriguez-Grande EI 

PROVIDER: S-EPMC11523826 | biostudies-literature | 2024 Oct

REPOSITORIES: biostudies-literature