Informal caregiver burden in dialysis care and how it relates to patients' health-related quality of life and symptoms.

ABSTRACT:

Background

Informal caregivers play a crucial role in dialysis care but may experience significant burden, potentially affecting both caregiver and patient outcomes. Research on caregiver burden and health-related quality of life (HRQoL) and the relation to patient-reported outcomes (PROs) is lacking. Therefore, we aimed to (i) describe informal caregivers' experienced burden and HRQoL and (ii) investigate how these are related to dialysis patients' HRQoL and symptoms.

Methods

We conducted a cross-sectional study at dialysis initiation with 202 adult informal caregiver-dialysis patient dyads. Caregiver burden was measured with the Self-Perceived Pressure from Informal Care (SPPIC) questionnaire, HRQoL with the 12-item Short Form Health Survey (SF-12), and symptom number and

SUBMITTER: Driehuis E 

PROVIDER: S-EPMC11528300 | biostudies-literature | 2024 Nov

REPOSITORIES: biostudies-literature