The impact of diagnosis delay on European patients with generalised myasthenia gravis.

ABSTRACT:

Objective

The objective was to determine the mean duration of diagnosis delay for patients with myasthenia gravis from five European countries and explore the impact of >1 year diagnosis delay.

Methods

Patients with myasthenia gravis (N = 387) from Europe (France/Germany/Italy/Spain/United Kingdom) and their physicians participated in the Adelphi Real World Myasthenia Gravis Disease Specific Programme™. Diagnosis delay (time from symptom onset to diagnosis) was calculated and characteristics described for patients experiencing >1 year and ≤1 year diagnosis delay. Denominators varied according to outcome as missing data were not imputed.

Results

Mean (standard deviation) diagnosis delay was 363.1 (520.9) days, and 27.1% (105 out of 387) of patients experienced diagnosi

SUBMITTER: Cortes-Vicente E 

PROVIDER: S-EPMC11537147 | biostudies-literature | 2024 Sep

REPOSITORIES: biostudies-literature