The role and perception of the caregiver in a specialized pediatric palliative care center in medicine preparation and administration: a survey study.

ABSTRACT:

Background

In pediatric palliative care, the main caregiver is primarily responsible for managing pharmaceutical therapies. Few data are available regarding the influence of this burden on quality of life in terms of time, concerns as well as a considerable risk of administration errors and adverse effects. This study aims to investigate how caregivers prepared and administrated medication, including errors and associated expectations, to identify improvement interventions.

Methods

Between October 2022 and March 2023, a descriptive single-center survey study was carried out in the tertiary care pediatric palliative center of the Padova University Hospital. Participants were the caregivers of the patients followed by our center up to 23 years old, receiving at least one drug

SUBMITTER: Baratiri F 

PROVIDER: S-EPMC11539818 | biostudies-literature | 2024 Nov

REPOSITORIES: biostudies-literature