Financial strain and resilience: a qualitative exploration of parental perspectives on caring for children with sickle cell disease in Ghana.

ABSTRACT:

Background

In Ghana, nearly one in four (25%) of the population are sickle cell disease carriers. Furthermore, 2% of all babies born (20 for every 1000 live births) has sickle cell disease. However, little is known about how parents negotiate the financial challenges facing parents of a child with sickle cell disease. This study explores the financial difficulties of parents and children living with sickle cell disease.

Methods

The study adopted a qualitative approach. Twenty-seven parents were purposively selected from a sickle cell clinic in Accra, Ghana. Data collection was through an in-depth, face-to-face interview, using an interview guide based on the research objectives, and analyzed using thematic analysis.

Result

The findings showed that parents faced multip

SUBMITTER: Ampomah MO 

PROVIDER: S-EPMC11556171 | biostudies-literature | 2024 Nov

REPOSITORIES: biostudies-literature