National Registry for Childhood Onset Scleroderma I: Insights from the first 341 juvenile localized scleroderma patients.

ABSTRACT:

Objectives

There is an under recognition of juvenile-onset localized scleroderma and its extracutaneous manifestations leading to delay in systemic treatment. Our study aims to address this gap by describing the demographics, presentation, associated family history, concurrent autoimmune disease, extracutaneous manifestations, laboratory evaluation, treatment, and course of disease in juvenile-onset localized scleroderma patients enrolled in the National Registry for Childhood Onset Scleroderma.

Methods

Participants for this study were derived from the National Registry for Childhood Onset Scleroderma and included 341 patients with juvenile-onset localized scleroderma. Demographic, and prospectively collected outcome measures, such as the Localized Scleroderma Cutaneous Asse

SUBMITTER: Branton SA 

PROVIDER: S-EPMC11559527 | biostudies-literature | 2024 Sep

REPOSITORIES: biostudies-literature