Exploring barriers and ethical challenges to medical data sharing: perspectives from Chinese researchers.

ABSTRACT:

Background

The impetus for policies promoting medical data sharing in China has gained significant traction. Nonetheless, the present legal and ethical framework governing the research use of medical data in China, is characterized by a more restrictive rather than permissive approach. The proportion of Chinese medical data being leveraged for scientific research still has room for improvement at present, indicating a significant untapped potential for advancing medical knowledge and improving healthcare outcomes. Building upon this research, we aim to delve deeper into the challenges researchers encounter in the sharing of medical data through focus group interviews.

Methods

We conducted two focus group interviews study with researchers representing diverse disciplines to e

SUBMITTER: Li X 

PROVIDER: S-EPMC11566659 | biostudies-literature | 2024 Nov

REPOSITORIES: biostudies-literature