Challenges and opportunities in newly diagnosed glioblastoma in the United Kingdom: A Delphi panel.

ABSTRACT:

Background

Glioblastoma is the deadliest primary malignant brain tumor in adults with limited treatment options and an average survival time of 12-18 months in the United Kingdom. In addition, glioblastoma has a highly detrimental impact on physical, cognitive, and emotional well-being, leaving substantial unmet needs for patients and caregivers. This study aimed to identify unmet needs in people with newly diagnosed glioblastoma and opportunities to mitigate them.

Methods

Utilizing Delphi methodology, an initial roundtable discussion with patient advocacy experts from 5 brain tumor organizations in the United Kingdom informed the development of 2 rounds of surveys across 9 domains (diagnosis, treatment, integrated care, support beyond treatment, quality of life, access to n

SUBMITTER: Bulbeck H 

PROVIDER: S-EPMC11567735 | biostudies-literature | 2024 Dec

REPOSITORIES: biostudies-literature