Impact of disability-based discrimination in healthcare on parents of children with medical complexity.

ABSTRACT:

Aim

To qualitatively assess the impact of disability-based discrimination in healthcare on the parents of children with medical complexity (CMC).

Method

In this qualitative study, we conducted in-depth, semi-structured interviews with the parents of CMC. Data collection and analysis occurred iteratively; constant comparison methods were used to identify themes describing the impact of disability-based discrimination in pediatric healthcare on the parents of CMC.

Results

Thirty participants from 15 US states were interviewed. Four themes were developed regarding the impact of disability-based discrimination in healthcare on parents. The themes were: (1) discrimination leads to a loss of trust in healthcare providers; (2) discrimination increases the burden of caregivin

SUBMITTER: Ames SG 

PROVIDER: S-EPMC11579817 | biostudies-literature | 2024 Sep

REPOSITORIES: biostudies-literature