Accessibility of and Barriers to Long-Term Follow-Up Care for Childhood Cancer Survivors.

ABSTRACT:

Importance

Childhood cancer survivorship programs and long-term follow-up (LTFU) practices are inadequate in most regions of China.

Objective

To understand the clinician and caregiver perceptions of LTFU care and to identify barriers to adherence to LTFU care in mainland China.

Design, setting, and participants

This survey study had a 2-phase sequential mixed-methods approach, consisting of a cross-sectional survey followed by semistructured interviews. Participants included oncology clinicians recruited through an educational seminar on LTFU and caregivers recruited through convenience sampling. Data were collected from November 2022 to September 2023.

Main outcomes and measures

The clinician survey and interview focused on the standards and resources for LTFU

SUBMITTER: Cai J 

PROVIDER: S-EPMC11581527 | biostudies-literature | 2024 Oct

REPOSITORIES: biostudies-literature