A Dutch paediatric palliative care guideline: a systematic review and recommendations on advance care planning and shared decision-making.

ABSTRACT:

Background

In paediatric palliative care, children with life-threatening and life-limiting conditions, their families, and their health care professionals often face difficult decisions about treatment, goals of care, and delivery of care. Advance care planning and shared decision-making are strategies that can improve quality of care by discussing goals and preferences on future care. In this paper, we provide recommendations that aim to optimise advance care planning and shared decision-making in paediatric palliative care in the Netherlands.

Methods

A multidisciplinary guideline panel of 20 experts in paediatric palliative care and nine (bereaved) parents was established to develop recommendations on advance care planning and shared decision-making. We performed systemati

SUBMITTER: van Teunenbroek KC 

PROVIDER: S-EPMC11585104 | biostudies-literature | 2024 Nov

REPOSITORIES: biostudies-literature