A matrix tool to foster patient engagement in children, adolescents and young adults: report from a multistakeholder workshop.

ABSTRACT:

Background

Patient engagement has become increasingly important in drug development, yet structured guidance to engage children (2-11 years old), adolescents (12-17 years old), and young adults (18-24 years old) is lacking. This study aims to create a matrix tool to foster paediatric patient engagement in drug development by hosting a multistakeholder workshop.

Methods

A matrix tool was co-developed by the study team and the expert group to provide a framework for paediatric patient engagement across drug development stages. The matrix tool's concept was evaluated using a Delphi-based approach. A pre-workshop questionnaire was sent to 55 experts, followed by an online multistakeholder workshop with 38 participants. A post-workshop questionnaire was redistributed to the initi

SUBMITTER: Cavaller-Bellaubi M 

PROVIDER: S-EPMC11600809 | biostudies-literature | 2024 Nov

REPOSITORIES: biostudies-literature