Real-world psychosocial impact among patients with juvenile idiopathic arthritis and families in Spain.

ABSTRACT:

Background

To assess the psychosocial impact of moderate-severe juvenile idiopathic arthritis (JIA) on patients and their families, among those who had been treated with at least one anti-tumor necrosis factor (anti-TNF-α), according to routine clinical practice in Spain.

Patients and methods

A 24-month observational, multicentric, cross-sectional and retrospective study was performed. Children diagnosed with JIA were enrolled at three tertiary-care Spanish hospitals. The study included children treated with biologic disease-modifying antirheumatic drugs (bDMARD) who participated in a previous study, the ITACA, and who continued follow-up in these pediatric rheumatology units. Patient health-related quality of life (HRQoL) was assessed using the Pediatric Quality of Life Inv

SUBMITTER: Calvo Penades I 

PROVIDER: S-EPMC11600913 | biostudies-literature | 2024 Nov

REPOSITORIES: biostudies-literature