Life After Neonatal Seizures: Characterizing the Longitudinal Parent Experience.

ABSTRACT:

Background

Parents of neonates with seizures report persistent symptoms of depression, anxiety, and posttraumatic stress. We aimed to characterize the parent experience of caring for children impacted by neonatal seizures, including longitudinal assessment across childhood.

Methods

This prospective, observational, multicenter study was conducted at Neonatal Seizure Registry (NSR) sites in partnership with the NSR Parent Advisory Panel. Parents completed surveys at discharge; 12, 18, and 24 months; and 3, 4, 5, 7, and 8 years. Surveys included demographic information and open-ended questions targeting parent experience. A conventional content analysis approach was used.

Results

A total of 320 caregivers completed at least one open-ended question, with the majority of r

SUBMITTER: Field NK 

PROVIDER: S-EPMC11602358 | biostudies-literature | 2024 Dec

REPOSITORIES: biostudies-literature