"I just don't know enough": Australian perspectives on community involvement in health and medical research.

ABSTRACT:

Background

There is increasing global support from governments and other funding bodies for community involvement in research, alongside a scientific and moral imperative for responsible and ethical research practice. Ninety per cent of Australian patient-led organisations in rare diseases have clearly articulated research priorities, indicating a desire among people affected by disease to be involved in research that impacts their communities. Philanthropic research, which is likely to have predominantly community-minded priorities, is worth over AU$1 billion annually and increased more than 100% between 2007 and 2017.

Aims

This research aimed to understand public perspectives on community involvement in health-related research activities, and to inform the development of g

SUBMITTER: Russo F 

PROVIDER: S-EPMC11603817 | biostudies-literature | 2024 Nov

REPOSITORIES: biostudies-literature