Development of a minimum data set for long COVID: a Delphi study protocol.

ABSTRACT:

Introduction

Previous consensus-based long COVID research has focused on establishing research priorities, developing clinical definitions, core outcomes and a list of recommendations of patient-reported outcome measures that can be used to assess and characterise long COVID. Complementing and extending this work, the proposed study will bring together diverse knowledge users to prioritise concepts of care, quality of life and symptoms to inform a national patient registry on long COVID.

Methods and analysis

We will conduct a Delphi process involving Canadians with lived experiences and/or professional expertise with long COVID (including clinicians, policymakers, caregivers and community leaders). A pool of long COVID survey questions has been established through an environ

SUBMITTER: Amah A 

PROVIDER: S-EPMC11603833 | biostudies-literature | 2024 Nov

REPOSITORIES: biostudies-literature