Research data use in a digital society: a deliberative public engagement.

ABSTRACT: Sources of public and private data and ways to link them continue to evolve. This offers new opportunities for research, and new reasons for data-holding organisations to form partnerships. While research using these data can be beneficial, there is also a potential for negative consequences for some individuals or groups, including unintended or unanticipated effects. It is important to consult the public on how we might achieve both opportunities to link different types of data for research purposes, and protections against the misuse of data and the possibility of negative consequences. Combining data sources for research was the topic of four days of deliberation held in British Columbia, Canada in late 2019. Public deliberation events bring diverse groups of people together to give di

SUBMITTER: McGrail KM 

PROVIDER: S-EPMC11606539 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature