Exploring caregiver experiences and support needs in end-of-life care for people living with HIV: A scoping review protocol.

ABSTRACT:

Background and objectives

End-of-life care supports individuals in the last few weeks or months of their life and their caregivers, offering psychosocial support, symptom management and relief, and resources. While some of the first public end-of-life care facilities were established due to HIV/AIDS, the current needs of caregivers for people living with end-stage HIV are not well understood. Caregivers provide two-thirds of the care for people living with HIV, yet their specific support needs and experiences are under-researched. Existing strategies often use a "one-size-fits-all" approach, which may not address the unique challenges faced by these caregivers, such as stigma and lack of social support. This study aims to synthesize the literature on the end-of-life care experience

SUBMITTER: Kokorelias KM 

PROVIDER: S-EPMC11611074 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature