Predictors of frequency of CF care in the US Cystic Fibrosis Foundation Patient Registry.

ABSTRACT:

Introduction

Prolonged gaps in care of >12-months are frequent among people with cystic fibrosis (pwCF) and are associated with reduced lung function. Comprehensive analysis of patient-level predictors of visit frequency is needed to optimize protocols for stable pwCF and identify subgroups at high risk of gaps and poor outcomes, promoting equitable treatment for all pwCF.

Objective

To determine sociodemographic and disease-related factors predictive of visit frequency in pwCF and to assess how these effects vary across the lifespan.

Methods

We conducted an observational cohort study using data from 2004-2016 for pwCF aged 6-60 years in the US Cystic Fibrosis Foundation Patient Registry. We modeled the relationship between patient-level characteristics and between-vis

SUBMITTER: Hinton AC 

PROVIDER: S-EPMC11614261 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature