SPOON: an observational, cross-sectional study of perceptions and expectations of adults with generalised myasthenia gravis in France.

ABSTRACT:

Objectives

To capture patient perceptions about living with myasthenia gravis (MG) with respect to aspirations and ways to improve treatment.

Design

Online patient survey.

Setting

Patients recruited by MG patient associations or at MG reference treatment centres.

Participants

Adults with physician-diagnosed generalised MG, living in France for ≥12 months, who had received ≥1 MG treatment were eligible. 291 patients opened the questionnaire, 255 were eligible and 246 completed the survey (age range 41-67 years; 187 women and 59 men).

Primary and secondary outcome measures

Primary: free-text response to the question 'Living with your disease, what would you like to do that you currently find difficult or impossible to do?' Secondary: free-text response to

SUBMITTER: Camdessanche JP 

PROVIDER: S-EPMC11624833 | biostudies-literature | 2024 Dec

REPOSITORIES: biostudies-literature