Remote assessment of myotonic dystrophy type 1: A feasibility study.

ABSTRACT:

Introduction/aims

Remote study visits (RSVs) are emerging as important tools for clinical research. We tested the feasibility of using RSVs to evaluate patients with myotonic dystrophy type 1 (DM1), including remote quantitative assessment of muscle function, and we assessed correlations of remote assessments with patient-reported function.

Methods

Twenty three subjects with DM1 were consented remotely. Toolkits containing a tablet computer, grip dynamometer, and spirometer were shipped to participants. The tablets were loaded with software for video-conferencing and questionnaires about functional impairment, patient experience with technology, and willingness to participate in future remote studies. Grip strength, forced vital capacity, peak cough flow, timed-up-and-go (TU

SUBMITTER: Hamel J 

PROVIDER: S-EPMC11629705 | biostudies-literature | 2022 Sep

REPOSITORIES: biostudies-literature