Communicating research findings as a return of value to All of Us Research Program participants: insights from staff at Federally Qualified Health Centers.

ABSTRACT:

Objectives

Research participants value learning how their data contributions are advancing health research (ie, data stories). The All of Us Research Program gathered insights from program staff to learn what research topics they think are of interest to participants, what support staff need to communicate data stories, and how staff use data story dissemination tools.

Materials and methods

Using an online 25-item assessment, we collected information from All of Us staff at 7 Federally Qualified Health Centers.

Results

Topics of greatest interest or relevance included income insecurity (83%), diabetes (78%), and mental health (78%). Respondents prioritized in-person outreach in the community (70%) as a preferred setting to share data stories. Familiarity with availabl

SUBMITTER: Smith KP 

PROVIDER: S-EPMC11631114 | biostudies-literature | 2024 Dec

REPOSITORIES: biostudies-literature