Equitable community-based participatory research engagement with communities of color drives All of Us Wisconsin genomic research priorities.

ABSTRACT:

Objective

The NIH All of Us Research Program aims to advance personalized medicine by not only linking patient records, surveys, and genomic data but also engaging with participants, particularly from groups traditionally underrepresented in biomedical research (UBR). This study details how the dialogue between scientists and community members, including many from communities of color, shaped local research priorities.

Materials and methods

We recruited area quantitative, basic, and clinical scientists as well as community members from our Community and Participant Advisory Boards with a predetermined interest in All of Us research as members of a Special Interest Group (SIG). An expert community engagement scientist facilitated 6 SIG meetings over the year, explicitly foste

SUBMITTER: Thareja SK 

PROVIDER: S-EPMC11631115 | biostudies-literature | 2024 Dec

REPOSITORIES: biostudies-literature