A survey of caregiver preferences regarding research participation in the paediatric emergency department.

ABSTRACT:

Objectives

Emergency department (ED) visits can be stressful for families and can affect caregiver willingness to consent to participating in research. Our objective was to describe when and how caregivers wish to be informed about clinical research during their child's ED visit.

Methods

An electronic survey was performed for families presenting to 10 Canadian paediatric EDs. A convenience sample of 1456 caregivers with children aged 0 to 17 years were enrolled. The survey tool was created (with an expert panel) using published methodological guidelines, including item generation/reduction, pre- and pilot-testing, and clinical sensibility assessment. Research-specific questions included the best time to be approached, the breadth of study opportunities presented, and best wa

SUBMITTER: Ma K 

PROVIDER: S-EPMC11638097 | biostudies-literature | 2024 Nov

REPOSITORIES: biostudies-literature