A nationwide survey of bereavement care for siblings provided by paediatric palliative care teams.

ABSTRACT:

Background

Bereavement support is considered a core standard of care for paediatric palliative care (PPC) teams. Support for grieving siblings can present unique challenges. Developmentally appropriate care can help children navigate their grief experience.

Objectives

To describe the provider perspectives (mission and development) of bereavement care for siblings, and to describe the bereavement follow-up interventions offered for siblings by hospital-based PPC teams nationwide.

Design and methods

Qualitative study conducted by semidirected telephone interviews. At least one member from each PPC team was interviewed. Interviews transcribed verbatim were analysed using grounded theory.

Results

Twenty-one teams participated (response rate 91%). Most teams (80%) p

SUBMITTER: Ridley A 

PROVIDER: S-EPMC11650496 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature