Patient perspectives on clinician-patient partnerships to achieve comprehensive pregnancy care in adult congenital heart disease.

ABSTRACT:

Background

Because adverse events are more common than in the general population, pregnancy is a high-risk experience for some patients with adult congenital heart disease (ACHD). Guidelines for pregnancy are based on published literature, informed by adverse clinical outcomes with less priority given to patients' lived experiences. This study aims to describe ACHD patients' expectations for and experiences with pregnancy, including factors that influenced patients' perceived quality of care."

Methods

We conducted a qualitative study of 25 patients who received care between 2010 and 2019. Purposive sampling was used to gain diversity in ACHD lesion complexity, race, age at pregnancy, and marital status. Semi-structured telephone interview data were analyzed using thematic an

SUBMITTER: Steiner JM 

PROVIDER: S-EPMC11657838 | biostudies-literature | 2022 Mar

REPOSITORIES: biostudies-literature