Comprehensive adolescent healthcare transition program for congenital adrenal hyperplasia: A quality improvement initiative.

ABSTRACT:

Background and significance

Congenital adrenal hyperplasia (CAH) is a genetic condition impairing adrenal steroid production, requiring lifelong steroid replacement, leading to decreased quality of life and a shortened lifespan. Preparing and supporting adolescents with CAH to develop health-related knowledge, skills, and decision-making during the pediatric-to-adult healthcare transition (HCT) is a priority. Many adolescents with CAH do not receive adequate HCT and do not attend follow-up care after transfer to an adult setting. The Comprehensive Adolescent Healthcare Transition (CAH-T) program was developed using CAH care guidelines and the Got Transition Six Core Elements of Healthcare Transition approach.

Purpose

This quality improvement (QI) initiative aimed to evaluate

SUBMITTER: Dennis J 

PROVIDER: S-EPMC11658564 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature