Development of a prototype of a patient-reported outcomes measure for hypospadias care, the Patient Assessment Tool for Hypospadias (PATH).

ABSTRACT:

Introduction/background

Patient-reported outcome measures (PROMs) for hypospadias care are lacking, and most existing instruments were developed without patient input.

Objective

The objective of this study was to 1) use our previously developed Hypospadias Journal for concept elicitation in a sample of adolescent and young adult hypospadias patients and 2) develop a new hypospadias PROM.

Study design

We recruited English-speaking males ages 13-30 living in the United States with a self-reported history of hypospadias through targeted advertisements on Facebook and Instagram from March to June 2022. Using a Qualtrics screening survey ineligible respondents were identified using automated fraud detection and manual review. Consenting participants were sent an electronic

SUBMITTER: Brown C 

PROVIDER: S-EPMC11661500 | biostudies-literature | 2024 Dec

REPOSITORIES: biostudies-literature