Top 10 research priorities for congenital diaphragmatic hernia in Australia: James Lind Alliance Priority Setting Partnership.

ABSTRACT:

Objectives

The Gaps in the Congenital Diaphragmatic Hernia (CDH) Journey Priority Setting Partnership (PSP) was developed in collaboration with CDH Australia, James Lind Alliance (JLA) and the Murdoch Children's Research Institute to identify research priorities for people with CDH, their families and healthcare workers in Australasia.

Design

Research PSP in accordance with the JLA standardised methodology.

Setting

Australian community and institutions caring for patients with CDH and their families.

Patients

CDH survivors, families of children born with CDH (including bereaved) and healthcare professionals including critical care physicians and nurses (neonatal and paediatric), obstetric, surgical, allied health professionals (physiotherapists, speech patholog

SUBMITTER: Chiletti R 

PROVIDER: S-EPMC11672073 | biostudies-literature | 2024 Dec

REPOSITORIES: biostudies-literature