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Dataset Information

A core outcome set for best care for the dying person: Results of an international Delphi study and consensus meeting.


ABSTRACT:

Background

Outcome measurement is essential to progress clinical practice and improve patient care.

Aim

To develop a Core Outcome Set for best care for the dying person.

Design

We followed the Core Outcome Measures in Effectiveness Trials (COMET) Initiative guidelines, which involved identifying potential outcomes via a systematic literature review (n = 619 papers) and from participants in the "iLIVE" project (10 countries: 101 patients, 37 family members, 63 clinicians), followed by a two-round Delphi study, and a consensus meeting.

Setting/participants

Clinicians, researchers, family members, and patient representatives from 20 countries participated in the Delphi Rounds 1 (n = 462) and 2 (n = 355). Thirty-two participants attended the consensus meeting.

R

SUBMITTER: Zambrano SC 

PROVIDER: S-EPMC11673312 | biostudies-literature | 2025 Jan

REPOSITORIES: biostudies-literature