International web-based survey of patients with non-hydrocephalic symptomatic pineal cysts.

ABSTRACT:

Objectives

To report the results of an international patient-reported survey that adds to the growing body of evidence surrounding the role of surgery in the management of a subset of patients with non-hydrocephalic symptomatic pineal cyst.

Design

An international web-based survey of health outcomes in patients with nhSPC.

Subjects

All survey participants who self-reported a diagnosis of symptomatic pineal cyst without hydrocephalus after radiological imaging.

Methods

The survey was developed in collaboration with the patient group Pineal Cyst UK. It was publicised and distributed via several online platforms and social media. Data collected included demographics, cyst size, symptom frequency and severity, number of appointments with healthcare professionals, t

SUBMITTER: Harding J 

PROVIDER: S-EPMC11682015 | biostudies-literature | 2024 Dec

REPOSITORIES: biostudies-literature