Evidencing the challenges of care delivery for people with intellectual disability and epilepsy in England by using the Step Together toolkit.

ABSTRACT:

Background

People with intellectual disability (PwID) and epilepsy have increased premature and potentially preventable mortality. This is related to a lack of equitable access to appropriate care. The Step Together guidance and toolkit, developed with patient, clinical, charity and commissioning stakeholders, allows evaluation and benchmarking of essential epilepsy service provision for PwID in eight key domains, at a care system level.

Aims

To evaluate care provisions for adult PwID and epilepsy at a system level in the 11 integrated care systems (ICSs) of the Midlands, the largest NHS England region (population: approximately 11 million), using the Step Together toolkit.

Method

Post training, each ICS undertook its benchmarking with the toolkit and submitted their

SUBMITTER: Shillito T 

PROVIDER: S-EPMC11698203 | biostudies-literature | 2024 Oct

REPOSITORIES: biostudies-literature