Patient perspectives on educational needs in scleroderma-interstitial lung disease.

ABSTRACT:

Background

Systemic sclerosis is a chronic and rare connective tissue disease with multiorgan effects, including interstitial lung disease (ILD). Navigating systemic sclerosis-interstitial lung disease presents a challenge for patients due to the gaps in patient education, which can impact patient health and quality of life. This study utilized the nominal group technique to identify priority knowledge gaps among patients with systemic sclerosis-interstitial lung disease and inform future educational interventions and research.

Methods

We conducted four structured group sessions using the nominal group technique. Patients with systemic sclerosis-interstitial lung disease were presented with two questions that aimed to identify knowledge gaps. Following participant ranking, i

SUBMITTER: Savvaides TM 

PROVIDER: S-EPMC11701898 | biostudies-literature | 2025 Jan

REPOSITORIES: biostudies-literature