Understanding Patient Registries for Diabetes: A Scoping Review of Published Literature.

ABSTRACT: Background: Diabetes registries have grown in prevalence and incorporated patient engagement opportunities to support diabetes management. We aimed to understand the goals, purpose, and context for diabetes registries defined as patient-focused and how people with diabetes are engaging with these registries. Methods: We searched Pubmed, MEDLINE, Embase, and Emcare using the following criteria: (1) the population is people with diabetes mellitus, including type 1, type 2, and/or gestational diabetes; and (2) the study describes a patient focused registry. Results: The search identified 346 citations, 9 of which were included. The goals of the registries included: developing referral systems, evaluating community-based interventions, collecting self-reported data, improv

SUBMITTER: Moayad L 

PROVIDER: S-EPMC11748152 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature