Sharing data matters: exploring the attitudes of older consumers on an emerging healthy ageing data platform using electronic health records for research.

ABSTRACT:

Background

In Australia, with the recent introduction of electronic health records (EHRs) into hospitals, the use of hospital-based EHRs for research is a relatively new concept. The aim of this study was to explore the attitudes of older healthcare consumers on sharing their health data with an emerging EHR-based Research Data Platform within the National Centre for Healthy Ageing.

Methods

This was a qualitative study. Two workshops were conducted in March 2022 with consumer representatives across Peninsula Health, Victoria, Australia. The workshops comprised three parts: (1) an ice-breaker (2) an introduction to EHR-based research through the presentation of 'use case' scenarios and (3) focus group discussions. Qualitative data were analysed using reflexive thematic analys

SUBMITTER: Naude K 

PROVIDER: S-EPMC11751950 | biostudies-literature | 2025 Jan

REPOSITORIES: biostudies-literature