A Snapshot of United States Sarcoidosis Patients and their Perceived Disease Impact: Results of the Sarcoidosis Research Institute Survey.

ABSTRACT:

Purpose

The priorities and concerns of sarcoidosis patients in the United States (US) have not been well-described.

Methods

A survey constructed by sarcoidosis patients and doctors was administered to US sarcoidosis patients. The survey queried patients concerning their demographics, disease state, disease impact on health and well-being, health care priorities and impressions of sarcoidosis care. Respondents were solicited via social media and networking with sarcoidosis clinicians.

Results

1018 US sarcoidosis patients completed this survey. 65% were female, 63% White, 34% Black, and 87% > 45 years old. The most common organs involved were the lungs 87%, skin 30%, heart 25%, and eyes 25%. Household income was < $50 K in 31% and > $150 K in 14% of patients. There was

SUBMITTER: Obi ON 

PROVIDER: S-EPMC11754370 | biostudies-literature | 2025 Jan

REPOSITORIES: biostudies-literature