National COVID Cohort Collaborative data enhancements: a path for expanding common data models.

ABSTRACT:

Objective

To support long COVID research in National COVID Cohort Collaborative (N3C), the N3C Phenotype and Data Acquisition team created data designs to aid contributing sites in enhancing their data. Enhancements include long COVID specialty clinic indicator; Admission, Discharge, and Transfer transactions; patient-level social determinants of health; and in-hospital use of oxygen supplementation.

Materials and methods

For each enhancement, we defined the scope and wrote guidance on how to prepare and populate the data in a standardized way.

Results

As of June 2024, 29 sites have added at least one data enhancement to their N3C pipeline.

Discussion

The use of common data models is critical to the success of N3C; however, these data models cannot account for

SUBMITTER: Walters KM 

PROVIDER: S-EPMC11756694 | biostudies-literature | 2025 Feb

REPOSITORIES: biostudies-literature