Mothers Who Accompany a Child to Their Death: Starting Again Without Ever Forgetting.

ABSTRACT: Background/Objectives: Parents who accompany their children with a complex chronic illness until their death experience a unique situation, with vulnerabilities, specific needs and enormous suffering. The aim of the study was to describe the lived experience of parents who accompanied their children with a complex chronic illness until their death, in a paediatric palliative care setting. Methods: We opted for a qualitative methodology, with a descriptive phenomenological orientation. Phenomenological interviews were carried out with nine intentionally selected mothers, with the support of a paediatric palliative care hospital team. The procedural phases of van Kaam's method, modified by Moustakas, were used to analyse the data. Results: An understanding of the essenti

SUBMITTER: Correia ME 

PROVIDER: S-EPMC11767767 | biostudies-literature | 2025 Jan

REPOSITORIES: biostudies-literature