'You Can't Muck Around With Transplant': Young People's Experiences of Clinical Care Following Lung Transplant.

ABSTRACT:

Background

Lung transplantation improves survival and quality of life in young people with end-stage lung disease. Few studies have investigated the clinical care experiences of young people after lung transplantation.

Design

This qualitative study aimed to explore the experiences of young people who underwent lung transplantation. Semi-structured interviews were conducted with 16 lung transplant recipients (< 25 years at transplant). Interviews were analysed to identify themes and categorize and describe the experience of young lung transplant recipients.

Results

The themes that emerged were (1) Hope and spectre: The transplant dilemma; (2) Information delivery and comprehension; (3) Independence and navigating care; and (4) Continuity and youth-appropriate care. Fin

SUBMITTER: Paraskeva M 

PROVIDER: S-EPMC11775388 | biostudies-literature | 2025 Feb

REPOSITORIES: biostudies-literature