KaRhab: an international online registry for cardiac rhabdomyomas.

ABSTRACT:

Background

Cardiac rhabdomyoma (RHM) is considered one of the most frequent benign heart tumors in children. However, encounters with cardiac RHM in clinical practice remain rare. Clinical information is primarily available in the form of single case reports or smaller studies with a shortage of large-scale reviews encompassing a substantial number of cases.

Results

In order to congregate existing and future information on cardiac RHM we established a web-based cardiac RHM online registry using an online survey tool. In addition we integrated previously published data from individual case reports and case series. The evaluation of this paper is intended to provide a brief overview of the cohort that we have been able to include so far. Our findings mainly confirm the previou

SUBMITTER: Herrmann VM 

PROVIDER: S-EPMC11780848 | biostudies-literature | 2025 Jan

REPOSITORIES: biostudies-literature