Patient-reported outcome for physical function in idiopathic inflammatory myopathy.

ABSTRACT:

Objectives

There is an unmet need to develop patient-reported outcomes measures for idiopathic inflammatory myopathies (IIM). We aimed to investigate the feasibility, compliance and psychometric properties of the National Institutes of Health's Patient-Reported Outcomes Measurement Information System (PROMIS) physical function-20 (PF-20) in a large US IIM population.

Methods

'Myositis Patient Centered Tele-Research' (My PACER) is a multicentre prospective observational study of IIM patients, competitively recruited through traditional in-person clinic visits [centre-based cohort (CBC)], and remotely using smartphone- and web-based technology [tele-research cohort (TRC)]. The CBC was further randomly divided (1:1 ratio) into a traditional local subcohort and a remote subcohor

SUBMITTER: Keret S 

PROVIDER: S-EPMC11781581 | biostudies-literature | 2025 Feb

REPOSITORIES: biostudies-literature