BreathCarer: Informal carers of patients with chronic breathlessness: a mixed-methods systematic review of burden, needs, coping, and support interventions.

ABSTRACT:

Background

Breathlessness is a common symptom in chronic and advanced diseases, and it poses a significant burden to patients and to their informal carers. They play a crucial role in sustainable care for patients living with breathlessness, but their challenges and needs are often neglected.

Objective

To provide a systematic overview of the literature on the burden, needs, coping and use of healthcare and social services by carers of patients suffering from chronic breathlessness due to any life-limiting disease.

Design

A mixed-methods systematic review (PROSPERO CRD42022312989).

Data sources

Medline, CENTRAL, PsycINFO, and CINAHL were searched and complemented with forward and backward searches and expert consultation.

Review methods

The mixed-methods

SUBMITTER: Blutgen S 

PROVIDER: S-EPMC11786361 | biostudies-literature | 2025 Feb

REPOSITORIES: biostudies-literature