Patient and parent perspectives on an academic rheumatology transition clinic.

ABSTRACT:

Objectives

To better define components of successful Health Care Transition (HCT) we surveyed patients in an academic Rheumatology Transition clinic at the University of Utah. Results can be used to improve HCT over time.

Methodology

We asked patients and parents to complete Mind the Gap and the Transition Feedback survey as part of a larger registry dataset collected from said Rheumatology Transition clinic. Results from Mind the Gap and the Transition Feedback survey were analyzed. Survey responses are presented as averages.

Results

Sixty-five patients and 42 parents completed Mind the Gap. Patients report that the clinic is outperforming their expectations in 20 of 22 variables. Parents report that the clinic is underperforming their expectations in 23 of 27 variab

SUBMITTER: Overbury RS 

PROVIDER: S-EPMC11786896 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature