Impact of and research priorities in early onset epilepsy: An investigation of parental concerns.

ABSTRACT: [Background and aim] Early onset epilepsy is a neurological condition with significant developmental consequences, and presents affected children and families with challenges which pervade many aspects of family life. Whilst the concerns of parents and the impact on quality of life is well documented in qualitative research, little emphasis has been placed on the context of 'early onset', and the implications of these concerns for research priority setting. We aimed to explore parental perspectives regarding concerns and the impact of early onset epilepsy on the child and family, and to identify priorities for future paediatric epilepsy research. [Methods] The Brain development in Early Epilepsy: Parent Priorities (BEE-PP) project employed a mixed methods approach to collect information on

SUBMITTER: Lindsay N 

PROVIDER: S-EPMC11790341 | biostudies-literature | 2024 Jul

REPOSITORIES: biostudies-literature