Enhancing ALS disease management: exploring integrated user value through online communities evidence.

ABSTRACT:

Introduction

Assistive technologies (ATs) offer significant potential to improve the quality of life for individuals with Amyotrophic Lateral Sclerosis (ALS). This study explores the concept of integrated user value (IUV), focusing on five key aspects: quality, user experience, cost-effectiveness, safety, and accessibility. Understanding IUV is crucial for enhancing the development and deployment of ATs in ALS disease management.

Methods

A systematic search approach was utilized to collect data from Facebook ALS support groups, comprising posts from individuals with ALS and their caregivers. Using a predefined set of keywords, 416 posts were analyzed. The posts were categorized based on the five aspects of IUV, and an in-depth content analysis was conducted to explore patter

SUBMITTER: Hruska J 

PROVIDER: S-EPMC11792661 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature