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Dataset Information

<i>G</i>lioma <i>r</i>esource <i>o</i>utreach <i>w</i>ith <i>s</i>upport: A program to identify and initiate supportive care interventions for unmet needs among adult lower-grade glioma patients.


ABSTRACT:

Background

Lower-grade (WHO grades 2-3) gliomas typically affect young and middle-aged adults and exhibit isocitrate dehydrogenase (IDH) mutations. For such patients, symptoms related to the tumor and associated treatment contribute to morbidity and erode quality of life. With improved treatment, a better understanding of these effects over time is critically needed. Existing data characterizing unmet needs of lower-grade glioma patients is limited and little consensus exists on addressing these needs in clinical practice.

Methods

In order to better identify and address the unmet needs of lower-grade glioma patients, focus groups among patients and caregivers were initially conducted among patients treated at a single academic center. A semi-structured intervie

SUBMITTER: Garcia Fox R 

PROVIDER: S-EPMC11798613 | biostudies-literature | 2025 Feb

REPOSITORIES: biostudies-literature